June 2022 AMCer

If you would like to help an AMCer like this one, click here to donate to Helping AMC Families Incorporated

Shelby McMillan

My age: 9 1/2

My favorite things to do: Camping, playing with friends, swimming, going to the beach

Number of siblings: 1 sister named Raelyn (age 8)

Number of surgeries to date: 3

Assistance provided: lodging and insurance premium

Returning to West Palm Beach, FL for surgery #4

Chris and Roxanne McMillan live in Michigan and have been married for 16 years. When Shelby was born, they found out she had Arthrogryposis Multiplex Congenita and bilateral clubfeet. Shelby is only affected in her lower extremities (her legs).

Despite her physical challenges, Shelby is incredibly determined to reach her mobility goals. Corrections on her clubfeet started when she was an infant with her first surgery at age 1. A tenotomy was performed (heel cord/tendon release), where the surgeon clipped the tendons at the back of her heels to allow her feet to stretch up into a 90 degree angle for standing. At age 3 she relapsed and had to have another tendon release.

It was then that the family started researching more about Arthrogryposis and found other families and social media groups online, individuals with similar and different types of Arthrogryposis. These groups and families became a great support system. Exploring those groups and connecting with the families is how Shelby’s parents found Dr. Feldman and The Paley Institute.

The family met with Dr. Feldman back in 2018 and he recommended a surgery for Shelby to release the nerves in her hips and knees in an effort to improve her core. With the help of their local community, they were able to fundraise enough for Shelby to have this life changing procedure and Shelby had her surgery at The Paley Institute in West Palm Beach, FL back in March of 2019.

However, over the past year Shelby has grown tremendously, which has caused her to develop knock knees. Dr. Feldman has recommended another surgery to correct her knock knees so Shelby is scheduled for surgery with Dr. Feldman and his team at the end of June 2022. Shelby and her mom will be traveling back to West Palm Beach, FL for this procedure and Shelby’s post-op care/therapy and will return home to Michigan in mid-July.

Helping AMC Families will be assisting the McMillan family with the cost of lodging during their stay in Florida. Additionally, when AMC families travel out-of-state for medical care, they often have to pay for a special/individual medical policy to cover their child’s care because in-state insurance back home will not cover out-of-state specialty care. Because this is an added expense to the family budget, Helping AMC Families will also be covering the cost of Shelby’s private insurance policy for the months of June and July, 2022 while she and her mom are in Florida for this procedure as well as any out-of-pocket expenses that arise from her surgery/treatment.

Flash Forward to 2023!

An update from Shelby’s parents

Shelby had a growth plate procedure in June 2022 by Dr Feldman and Dr Huser. She is doing great and the plate will stay in for at least another 6 months. We will have another check up with Dr Feldman soon to determine whether the plate will need to come out or have it replaced. Thank you all again for your support!

If you would like to help an AMCer like Shelby,
click here to donate to Helping AMC Families Incorporated

Nana : Would you rather be rich or kind?

Ana : Kind

Nana : Why?

Ana : Because kind people do beautiful things.

– AMC Princess Ana & Nana

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